About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Wednesday, September 11, 2013

We Shall See...

Right now is a lot of just waiting to see...
It turns out, they only scheduled Mira for shunt surgery for Friday morning as a precaution. Dr. Greene wants to be sure that, if anything is revealed on Thursday indicating a malfunction, Mira already has a surgical slot available. So as of this moment, nothing is indicating that she needs surgery. We will reassess that option after obtaining new scans and lab results on Thursday.
As for her hip, I am waiting for the head of Ortho to review her hip ultrasound results and call me back. His secretary said I should be receiving that call later this afternoon. So right now, I'm just watching and waiting, and we shall see over the next few days what the results are for everything.

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