About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Thursday, April 18, 2013

Spinal Cord & Colostrum

I updated this information on Facebook, but I'll share it here as well. When I called over to children's hospital this morning to receive an update about Mira and ask questions, the nurse informed me that the reason her surgery was pushed up to today is because, not only is the membrane covering her tissue really fragile and unusable, but it actually ruptured in one spot, and through that rupture, the spinal cord is out and exposed. This is exactly what we didn't want to have happen. But hopefully, by them moving up the surgery, we can avoid an infection and/or any more damage being done to the exposed cord, which are our two big concerns right this second. She still hasn't eaten anything, and she won't be allowed to eat until at least 24 hours after her surgery, so I'm trying to prepare a milk supply for her.
After all night of pumping, I've got just an ounce of colostrum. For those who don't know, colostrum is the type of milk that comes out of your breasts directly after having a baby. It is designed to clear out their system from months of being in the womb, and it prepares their little gut to start digesting properly. Colostrum is much thicker than regular milk, which is why it's so difficult to get out of the breasts, but within a couple days, regular breast milk will start to take its place, and then things get much easier from there! I'm just gonna keep on working on it! I've never had to pump in the hospital before. I've always fed my children directly from the breast, so I never realized how difficult it was to stimulate milk production and get the colostrum out with a pump! But, regardless of how difficult (and at times, painful) it may be, it'll be so worth it when she can finally eat!

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