They said Mira did great! They were able to close her back, and they didn't have to take a graft from anywhere else on her. Thank goodness! They did not put her shunt in today, they put a temporary drain in to give her one last chance of clearing out her ventricles on her own, but they're 95+% sure she's going to need a shunt, so they're scheduling that operation for Tuesday. I guess Mira will still be intubated for another three to four hours because its going to take her a while to come out of the grogginess of anesthesia. While she's coming out of it, her breathing will be really off, so she can't be extubated until the anesthesia wares off.
She can't have anything putting pressure on her back for the next six weeks. No laying her on her back, no regular car seat, no holding her the way you would typically hold a baby, no clothes that would press on that area, etc.
We also won't know anything about her leg function or what the surgery may have helped or hurt for a little while. It's not as easy as testing her function whenever she wakes up because the nerves and tissue in her spine will be swollen and freshly manipulated from the surgery. This often causes function to be deceiving. For instance, she could have no leg function when she wakes up, but in a week when the swelling of the nerves go back down, she could be at 100%! There's just no way to know a lot of things right now, but we do know that her first surgery went great, and she's off the operating table, and she's on her way back to Joe right now to recover with her daddy because everything went fantastic today! That's all we know, and I am perfectly okay with that right now! Thank God! Thank you all for your prayers! Thank you, thank you, thank you!!!
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