About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Thursday, April 18, 2013

Mira's Surgery

Mira's surgery started at 3 o'clock. I have a direct line to the nurse that is receiving updates, so I am to call her at 4:30 to see if she has any updates to give me. The surgeons are definitely operating on her back, but were still deciding as to whether they were going to put in a temporary drainage tube in her head for the hydrocephalus, or if they are going to actually do the shunt operation, as well, at the same time that her back is being operated on.
I'm trying to keep distracted because freaking out isn't going to do any good while she's in the operating room. Instead, I'm going to keep trying to pump so that she will have food for when she recovers from surgery! I love you all, and I'll post more updates as soon as I know something!
Here's a picture Joe sent me of Mira being taken to surgery!

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