About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Tuesday, May 7, 2013

Awareness

While we all know that a pink ribbon means breast cancer awareness, I recently found out some new ribbon colors and their meanings.
Pale yellow ribbons are exclusively for spina bifida awareness.
Yellow ribbons mean many things, but spina bifida and hydrocephalus are two of them.
Purple also has many meanings, and the arnold chiari malformation is one.
While I don't yet know how our lives will play out or how each of these cureless conditions will impact my daughter throughout her life, I do know that Mira and everyone like her deserves for me to spread awareness. So I will get some yellow and purple ribbons, and I will wear them proudly!





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