About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Saturday, April 20, 2013

Just look at the difference!

This is the difference in her face in just a day and a half. The swelling in her face has gone down so much now that her ventricles are being drained. Her little features are so gorgeous, and now she can relax without all the pressure in her head! Take that, hydrocephalus!
The picture where she is intubated is after her surgery on Thursday night, and the other picture where her swelling has gone down so so so much is from five seconds ago!



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