About Me

United States
My fiance (Joe) and I (Caytie) just delivered our third child. We have a son named Dustin, age 4, a daughter named Aryanna, age 1, and our new little bundle's name is Mira, and she has been diagnosed with spina bifida. She has a myelomeningocele, a chiari malformation, hydrocephalus, and a club foot. She had surgery the day after she was born on her myelomeningocele, and surgery when she was 6 days old to place a shunt in her brain. She is facing more surgeries, a lifetime of recovery and monitoring, and we will all be facing the journey of spina bifida. Prayers and kind thoughts are always welcome, and if our story can help others, that would mean the world to us. Spina bifida is a fairly common birth defect, but there's nothing normal about facing potential danger with your child. So this is our story, the journey of spina bifida, as we live it.

Sunday, April 28, 2013

She Gained An Ounce!

Mira gained an ounce at her weigh-in tonight! She has to gain again tomorrow night, and then we could be released on Tuesday, but we're definitely not getting released tomorrow. Either way... she gained weight! Yay! And we didn't even fortify my breast milk or anything! This was all her! You go, little girl, you go!
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